Advocacy
We see our advocacy bolstered by actions while we work to educate and push for support for people suffering from Long COVID. Raising awareness is additionally important to us, as so many aren't informed on the hell that SARS-CoV-2 can cause in the form of Long COVID. We provide support to COVID long haulers in the ways we are able, but our main goals are to get biomarkers and tests, have common sense well structured clinical trials, and push for antivirals and drugs development for the treatment of acute and persistent SARS-CoV-2 and Long COVID. Real solutions are necessary so that people with Long COVID can improve, recover, and get back to life. Anything less is unacceptable!
Some main areas of focus:
* Biomarker validation so long haulers can have an approved test for Long COVID (currently no approved biomarkers or tests)
* Common sense well structured clinical trials, supporting in design and advocating the government and health agencies for better trials
* Antiviral and drug development for the treatment of SARS-CoV-2 and Long COVID
* Clean air and SARS-CoV-2 mitigation through campaigns and education
* Support of International Long COVID Awareness Day (3/15) and Month (March) organized by International Long COVID Awareness
* Pushing the government and health agencies to provide the Long COVID community with social support
* Directly educate schools, medical professionals, and others on Long COVID and push for them to take SARS-CoV-2 mitigation seriously
Actions & Activity
2023
- Long COVID Advocacy Begins (LCF Formation) (9/2023)
Long COVID Foundation is formed and our advocacy for people with Long COVID begins. We will continue to push for common sense well structured trials, biomarker and testing validation, and antiviral and drug development for Long COVID.
2024
- LCDC Demonstration (3/15/2024)
Supported and participated in LCDC, a demonstration on International Long COVID Awareness Day at the Lincoln Monument in Washington D.C. to raise awareness for Long COVID. More info can be seen here.
- Clean Air & COVID Mitigation in Schools (2024)
LCF is working to bring clean air and COVID mitigation to schools. We have been in talks with various schools district administrators, boards, and organizations as we push to reduce airborne illness for kids, teachers, and staff.
- Patient Treatment Survey (2024)
Results based on 206 patient responses will be available shortly.
- Long COVID Funding Push (2024)
Involved in requesting funding for people with Long COVID via calling and writing legislators and the HELP Committee.
- Long COVID Biomarkers Campaign (9/2024)
More than $34,000 raised in order to support Long COVID transcriptomic whole blood test and biomarker study. The research is still ongoing. Additional information can be seen here.
2025
- Lit Up For Long COVID, International Long COVID Awareness Day (3/15/2025)
LCF, and other advocacy groups and advocates, worked to get 106 sites lit in the United States to raise awareness for Long COVID on Long COVID Awareness Day. You can see more info here. Additionally, we helped to support Long COVID Awareness Day in any way we could.
- Participated in HHS Long COVID Round-table in Washington D.C. (9/18/2025)
Present on patient & clinician panel with Secretary Kennedy, Senator Marshall, and other members of the health agencies. You can watch the video of the event here.
2026
- Communicating with HHS & Other Health Agencies/Government Officials (2026)
Have been advocating on long haulers' behalf with those at HHS and other health and government officials.
- Panelist Participation for TOPx (2026)
Participated as a panelist for TOPx HHS Tech Sprint for Long COVID and Chronic Illness.
More To Be Added
* This is not a complete list of all our advocacy, but some of the main actions, activities, and milestones.