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Advocacy
We see our advocacy best utilized by actions and working to educate and rally support for Long COVID. Raising awareness is also important to us, as so many aren't informed on the hell that SARS-CoV-2 can cause in the form of Long COVID. We additionally provide support to COVID Long Haulers in the ways we are able, but some of our main goals are to get biomarkers and tests, common sense well structured clinical trials, and antivirals and drugs developed for the treatment of SARS-CoV-2 and Long COVID. Solutions are necessary so that people with Long COVID can improve, recover, and get back to life.
Some main areas of focus:
* Biomarker and test validation so they can be an approved and used for COVID Long Haulers (currently no approved biomarkers or tests)
* Common sense well structured clinical trials, supporting in design and advocating the government for better trials
* Antiviral and drug development for the treatment of SARS-CoV-2 and Long COVID
* Clean air and SARS-CoV-2 mitigation through campaigns and education
* Support of International Long COVID Awareness Day (3/15) organized by International Long COVID Awareness
* Push for the government and health agencies to provide the Long COVID community with support in various ways
* Directly educate schools, medical professionals, and others on Long COVID and lobby them to take SARS-CoV-2 mitigation seriously
Actions
- Long COVID Advocacy Begins (LCF Formation) (9/2023)
Status: Ongoing --- Long COVID Foundation is formed and our advocacy for Long COVID begins. We will continue to push for common sense well structured trials, biomarker and testing validation, and antiviral and drug development for Long COVID.
- LCDC Demonstration (3/15/2024)
Status: Complete --- Supported and participated in LCDC, a demonstration on International Long COVID Awareness Day at the Lincoln Monument in Washington D.C. to raise awareness for Long COVID. More info can be seen here.
- Clean Air & COVID Mitigation in Schools (2024)
Status: Ongoing --- LCF is working to bring clean air and COVID mitigation to schools. We have been in talks with various schools district administrators, boards, and organizations as we push to reduce airborne illness for kids, teachers, and staff.
- Patient Treatment Survey (2024)
Status: Complete --- Results based on 206 patient responses will be available shortly.
- Long COVID Funding Push (2024)
Status: Ongoing --- Involved in requesting $28/billion a year for Long Haul COVID via calling legislators, the HELP Committee, and writing letters.
- Long COVID Biomarkers Campaign (9/2024)
Status: Research Ongoing --- More than $34,000 raised in order to support Long COVID transcriptomic whole blood test and biomarker study. The research is still ongoing. Additional information can be seen here.
- Lit Up For Long COVID, International Long COVID Awareness Day (3/15/2025)
Status: Complete --- LCF, and other advocacy groups and advocates, worked to get 106 sites lit in the United States to raise awareness for Long COVID on Long COVID Awareness Day. You can see more info here. Additionally, we helped to support Long COVID Awareness Day in any way we could.
- Participated in HHS Long COVID Round-table in Washington D.C. (9/18/2025)
Status: Complete --- Present on patient & clinician panel with Secretary Kennedy, Senator Marshall, and other members of the health agencies. You can watch the video of the event here.